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MEDICAL RESEARCH UPDATE

We have a strong history of contributing to medical research. 
 
Congenital diaphragmatic hernia isn't well known in the medical community and is considered a rare defect. Families often face delays in receiving a diagnosis and appropriate medical care. 

We've been trying to create real change by funding CDH research so we can offer our community a brighter future.
Aidan Kashyap Hudson Institute 
Concord Birth Trolley Table 
A few years ago, CDH Australia selected the Hudson Institute for Medical Research at Monash University for a research grant which discovered the benefits of delaying umbilical cord clamping at birth in infants with congenital diaphragmatic hernia.

More recently, CDH Australia donated $30,000 to the Hudson Institute specifically to purchase a Concord Birth Trolley Table in order to participate in a global medical trial led out of the Netherlands.

The Concord Table will enable the medical team to improve birth for babies who need support by providing lifesaving care with the umbilical cord intact.  Close to mum, bub will have maximum benefit of blood from the placenta; and as we now know, delaying cord clamping has been shown to be beneficial where lung aeration is compromised.
 

The participation of the Hudson Institute, and the purchase of the Concord Table, will accelerate progress of the trial and provide vital experience to Australian clinicians on the logistics involved in providing support for babies born with CDH.
We urge families around Australia to help us raise funds for CDH.
Create a family fundraising page

Why is fundraising important?


The pressure of Coronavirus has meant that we, like many charities, have experienced a reduction in the donations needed to operate our organisation, and importantly, to fund medical research and equipment in the future.

Over 100 new families will begin their CDH journey this year. An experience with congenital diaphragmatic hernia is incredibly challenging and felt by all members of the family. 

Your help to encourage donations will support families impacted by CDH now, and will also provide our services to new families.

 
Please help us raise the funds we need for our day-to-day operations. We hope to exceed our target of $20,000 so we can continue our tradition of earmarking surplus funds to search for better medical treatments and a brighter future.
  

Every donation counts.


 

Create a family fundraising page

Each November, we run our main fundraising campaign, CDH Sunflower Sunday. Funds raised are essential to us so we can continue supporting CDH families throughout the year.
Start fundraising here
Help me set up a fundraising page

Make or encourage donations

By encouraging, or making a donation, you'll be helping a family facing a CDH diagnosis prepare for the confronting challenges ahead and give hope to a brighter future. 
Donate here
If you have any issues trying to set up an online fundraising page, please email our team and we'll assist you.

Here is where the money goes... 

 

- facilitating online support groups 
- researching and distributing educational content
- publishing an informative website 
- hosting an annual face-to-face forum
- running community picnics across Australia 
- offering care packs and financial support

and

- funding research
- purchasing medical equipment

Over 100 families will be affected by congenital diaphragmatic hernia in Australia this year but with no known cause, or cure, only half of these families will have the opportunity to take their new baby home.
Start encouraging donations

Let's conquer CDH together!

 

Supporting families and medical
professionals along their CDH journey.


Please reach out, we're here for you.

We support families throughout their CDH journey; expectant parents of a baby diagnosed with CDH, families caring for a CDH child, adults with CDH, and bereaved families. 

Our support service team members are parents with personal experience of CDH who understand the issues families face and will support you with compassion and empathy.


Discover our support resources here

Join our online support groups

Email us directly information@cdh.org.au


 
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