In this issue: Meet our CF Achievers and CF Nurse Hero, Vogmask Safety, Vote for CF in Good in the Hood + The Warehouse, Shop4CF at Noel Leeming and OurEco Home

View this email in your browser

Meet our CF Achievers!

Three young people have been honoured with CF Achiever’s Awards for their impressive records in sports, education and the arts.
Rachael Cox of Otago received a CF Achiever’s Award for her achievements in music and the dramatic arts.
This year Rachael (17) was named a drama and music prefect at Logan Park High School – with the aim of encouraging others to pursue their creative dreams. She has played the clarinet for eight years and been singing for five. In addition, Rachael received an Excellence endorsement in these subjects and also overall for NCEA. She plans to go to University to study for an arts degree next year and will put her CF Achiever’s Award towards the fees.
Angus Drumm (17) of Auckland was able to gain an Excellence endorsement for both Level 1 and Level 2 NCEA in spite of some of the challenges that CF cast his way including a hospitalisation in 2016 and adding another two treatments to his daily routine taking the total time up to an hour and a half twice a day. Angus (pictured left) plans to use his Award to help fund a six month student university exchange – in the US or Europe.
Joseph Voyce’s mother, Janet Camplin, nominated her son for a CF Achiever’s Award in sport for reaching his goals in body building after competing in the NABBA South Island champs where he placed 2nd and for winning 1st place in his category at the NABBA champs in 2016. Along with managing CF, Joe (26) also managed a gym in Dunedin before deciding to move to Auckland this year. Joe continues to pursue his goals in health and sport and plans to use his Award for an overseas trip in October.
Huge thanks to Mylan, makers of Creon, for sponsoring these awards.

European Cystic Fibrosis Conference

CFNZ Chief Executive Jane Bollard will be attending the 40th European Cystic Fibrosis Conference in Spain in June.
The Conference will focus on new approachces to CF therapies, the implications of genetics and standards of care. Before it starts Jane has the rare opportunity to meet with the CEOs of cystic fibrosis organisations from the UK, Ireland, Canada and Australia giving them the chance to discuss CF-related issues worldwide.
Jane has also been invited to visit the Pari Worldwide factory in Germany. CFNZ is grateful to Pari for providing sponsorship for some of Jane's trip.

Meet our CF Nurse Hero Viv Isles

CFNZ is nominating Canterbury CF Nurse Specialist Viv Isles in the Ansell Nurse Hero Awards.
Last year Starship Hospital's Jan Tate came a remarkable second place in these Awards, leading to a $3000 cheque for CFNZ.
You can vote for Viv here once voting starts next Thursday 1 June. People can vote once a day everyday. Viv, pictured here with Anahera, is well known for always going the extra mile for children with CF and the whole CF community. We are keen to support her with lots of votes.

Vote for CF at Z  Energy

Voting for Good in the Hood at Z Energy stations closes next Thursday. There are four stations around NZ with CF token boxes from Monday 1 May. Z Newton and Z Milford in Auckland, Z Te Awamutu in Waikato and Z Belfast in Christchurch. 
CF Auckland's been up against it in Newton where there are two cancer charities and also Auckland City Mission which provides help for the homeless.

...Vote at The Warehouse too

On the plus side Central Districts Branch has been raking in the tokens at Warehouse Whanganui. Be sure to ask for a voting token if you buy a plastic shopping bag at any of the 21 stores which have CF boxes. This voting cycle ends at the end of June and CFNZ branches can reapply for the next six month period now.

OurEco Home CF Friendly

We have just reconfirmed CFNZ's sponsorship agreement with OurEco Home which is good news. If you buy these chemical-free cleaning products, use the code CFNZ2015, and Our EcoHome will donate 15% of the order total to CFNZ. You can use the code when ordering online.

What is PORT CF?

PORT CF is a confidential patient registry owned by CFNZ collecting information on the health status of people with CF who receive care in hospitals around NZ. The information that is collected is used to create CF care guidelines and assist CF teams throughout NZ with the aim to improve CF care and treatment, and therefore improve a PWCF's quality of life. Not all adults and children with CF are registered on PORT CF and permission is required. This information is really important so please check with your CF Nurse or Specialist to ensure your (or your child's) information is being collected. PORT CF is the main patient registry that is used around the world and it is hoped that once we (NZ) have sufficient quality data our data will be able to be compared with other PORT CF registries.

CF News - Winter edition

CFNZ has received two grants to publish CF News next month. We expect the magazine will be posted towards the end of June. Email Vicky at comms@cfnz.org.nz if you have any stories or photos to include.

Vogmask Safety Concerns

The Cystic Fibrosis Foundation in the US has issued a statement against the use of Vogmasks in hospital and asked health professionals to let their patients and families know not to wear them at clinical appointments because they are not intended to protect against the spread of germs.
“Please note that these masks are NOT approved to protect against the spread of pathogens in the clinic or hospital setting. These masks are intended for use against environmental particles such as dust, pollen, and other particles found in air pollution,” the Foundation reported.
In New Zealand, the Paediatric Clinical Network infection control guidelines recommend the use of surgical masks for people with CF when in a hospital setting to reduce the risk of transmission or acquisition of CF pathogens.
“Masks should be worn throughout the facility, including in the toilets/restrooms. Masks should not be worn during lung function testing, in the clinic exam room, or in the patient's hospital room.
Environmental masks (such as Vogmask) are products designed to prevent inhaled contaminants. They are not designed to prevent germs from being exhaled and are therefore not recommended to prevent cross-infection in CF healthcare settings.”

Shop4CF

Noel Leeming's Discount Deal for CF runs until Sunday 4 June. Pay cost plus 7.5 percent and 2.5 percent comes to CFNZ. Click here for more info.

CFNZ hits the Jackpot

CFNZ won big at the Christchurch Casino charity night which featured weird and wonderful carnival acts such as bearded ladies and a monkey man, but the best part of the night was collecting the $5000 cheque for CFNZ as the winning charity.
Apparently the CFNZ team won by a long shot thanks to their luck on the black jack and roulette tables, and also being the closest to guess the number of jelly beans in a jar.
 

CF Conference Videos Ready Now

Most of the videos from the recent Cystic Fibrosis Conference have been uploaded to the CFNZ website and are available to view here. Sessions include Keynote Speaker Olympian Rob Hamill, Cross Infection in the Real World plus Fallon Earl's personal story - living life with CF.
CF Awareness Week dates: 14 - 20 August 2017

Good Links

Panui - click here to sign up
Facebook
Facebook
Website
Website
Copyright © 2017 Cystic Fibrosis New Zealand, All rights reserved.


unsubscribe from this list    update subscription preferences 

Email Marketing Powered by Mailchimp