In this issue: Chief Executive's New Year Resolution, Charity Cricket a Hit, Excellent XTF, Warehouse Tokens for CF, National Conference News, Friends' Fundraising, Travel to North Australia & South East Asia

View this email in your browser
CFNZ ushered in 2017 with a Facebook refresh. We have updated our cover image and are keen to regularly update this photo to keep the Page interesting. We would love to feature other people with CF on our cover image, so please email us with any great photos you have of PWCF living their lives to the full. Positive images like this one of Tayler and his brother Jordan involved in last year's Surf Day go a long way to helping promote the work of our organisation and awareness of cystic fibrosis. Also, click here to "Like" CFNZ  if you haven't already to keep up with the latest news.

Helluva Xmas Tree Festival

Congratulations to Hell Pizza for winning the best tree at the Wellington Xmas Tree Festival - it looked amazing and Hell is so confident it will win again next year it will pledge $1000 to CF if another business can beat the Hell Pizza tree in 2017. Hell has also been generous providing pizza vouchers at both the XTF and also Charity Cricket, so that's another new supporter we warmly welcome to the CF fold.This year there was an All Blacks tree and NZ Rugby CEO Steve Tew spoke at the gala opening about how much support the XTF brings to CFNZ and how the wider Wellington CF community has embraced the Festival and the CF cause.
...thanks to CFNZ Wellington
The whole Festival was organised by the Wellington Branch Committee volunteers (organising group pictured here) for the eighth year in a row. It's a lot of work - this year particularly so because Wellington Airport had a larger area set aside for the trees sponsored by businesses and organisations. 

Chief Executive's New Year Resolution

2017 is already off to a strong start thanks to our recent successful fundraisers.
Both Charity Cricket and the Xmas Tree Festival in Wellington generated impressive results and help us all work towards our mission to improve the quality of life for people with CF and their families.
We currently have three individuals who are competing in a triathlon and a marathon to help raise funds for CF. The New Year is always a good chance to get fit and raising funds for CF can provide an added incentive. I’m prepared to put my money where my mouth is because I am planning to walk the Rotorua Marathon and hope to raise funds for CF this year. You don’t have to walk or run a marathon to fundraise – there are lots of fun fundraising ideas out there. The team at CFNZ are happy to help people set up their Everyday Hero fundraising page to start the ball rolling.
This year it’s my personal wish that the organisation will be able to live up to this year’s annual conference theme of “Anything is Possible”. CFNZ has some big dreams and with the help of the CFNZ Board, branches, staff and volunteers it would be amazing to achieve some of them this year.
2018 will be a year of celebration for CFNZ's 50th anniversary and I am keen to hear from anyone who would like to be part of a team to look at how we mark this milestone and also from any historians who are keen to capture our history. Email me at
By Chief Executive, Jane Bollard

CFNZ Scores Big at Charity Cricket

The BNZ Crusaders won again when they stepped up to the plate for CFNZ at the annual Charity Cricket match in Christchurch. They narrowly beat the Olympic & All Star team captained by shot-put bronze medallist Tom Walsh with the final score at 154-144.
The auction fetched around $15K in total, with a watercolour painted by Kelvin McMillan especially for the event and an iPhone 7 fetching some of the highest bids. Crusaders crowd favourite fullback Richie Mo'unga said it was great to see the community get behind the 34th annual event.
We are also very thankful to Alana Taylor and Harry of Christchurch who helped highlight the event and issues related to CF.

CFNZ Conference - Save the Date!

The theme of this year's CFNZ National Conference is "Anything is Possible". The one-day conference will be held in Christchurch from 7-8 April with a welcome on Friday evening 7 April where there will be an opportunity to network. The keynote speaker is rowing champion Rob Hamill who is a motivational speaker. There will also be sessions on what's new, cross infection in the real world, and personal stories. Canterbury Branch will be hosting an exciting "Murder, Mystery" dinner on Saturday night and delegates can dust of their flares and platforms for the disco theme. Registration details for the conference will be available shortly. Many of our CFNZ branches are making grant applications so they can support their members to attend - please contact your branch to register your interest.

CFNZ Branches Win @ Warehouse

Six CFNZ branches have been fortunate to be selected for The Warehouse Bags for Good partnership programme. This is where shoppers who buy a 10 cent Warehouse bag can vote for their local community group of choice with a token from the checkout counter. Auckland's Atrium already has a CF token box and from Wednesday 1 February there will be 20 more Warehouse stores with CF posters on token boxes - nine Waikato stores (Hamilton Central, Hillcrest, Matamata, Morrinsville, Te Awamutu, Te Kuiti, the Base - Hamilton, Thames & Tokoroa), two Central Districts stores (Whanganui & Palmerston North) four Wellington stores (Johnsonville, Lyall Bay, Porirua & Petone), two at Nelson (Nelson & Motueka) and three in Otago (Alexandra, Dunedin - McClaggen St & South Dunedin). This is not only great for fundraising but also for raising awareness. Be sure to ask for voting tokens when you shop at the Warehouse.

Railway Day Full Stream Ahead

Keirunga Park in Havelock North, Hawke's Bay is hosting a Railway Day for CF on Sunday 5 February from 11am till 4pm. The Railway is a popular track which travels through Keirunga Park, tunnels, and around viaducts and scenic rock faces. It's wonderful Keirunga Park has named cystic fibrosis the official charity for its 2017 charity event. The Park has been rated in the top five best miniature railway tracks in the world. This could be a cool activity over the long weekend if you're in the area.

Friends and Family
Raise Funds

We are fortunate to have two friends raising funds for CF in honour of their mates. Maddison (pictured left) is great friends with seven-year-old Sophie (right) who has CF. Because of this terrific friendship Maddison's mum, Katrina, has decided to enter the Wanaka Half Ironman on 18 February and help top-up the Breath4CF fund at the same time with her Givealittle Page.
Our second "friend" is Matt Bowater, who currently lives in Australia. Matt grew up in Ashburton with his childhood friend with CF Ryan Hamilton, who sadly passed away in 2012. Matt will be Running for Ryan in the Hamilton Island Hilly Half Marathon in memory of his friend and also raising funds through his Running for Ryan Givealittle Page to help improve the lives of others with the condition. 
Meanwhile, Erika Hendy is doing a Swim Bike Run 4 CF in honour of her big sister Rebecca who passed away from CF. She has also entered the Wanaka Half Ironman and created a Givealittle Page to support CFNZ Canterbury. Great to see all these fundraising efforts going so well.

Travel to South East Asia

CFNZ has heard conflicting reports about the safety of travelling to South East Asia and North Australia. Some CF families have been told not travel there due to the risks of Meliodosis and others follow the advice of the CF Trust in the UK which recommends avoiding rural areas and also during the rainy season. It's advised members contact their CF medical team about travel to other countries well in advance of an overseas trip.

User-Friendly Gene Editing Factsheets

The Royal Society of New Zealand has released fact sheets about gene editing technologies being developed that aim to one day cure cystic fibrosis. There are a number of fact sheets available here – check out the ones related to "CRISPR", which is what researchers are working on to replace the faulty CF gene.

Good Links

Panui - click here to sign up
Copyright © 2017 Cystic Fibrosis New Zealand, All rights reserved.

unsubscribe from this list    update subscription preferences 

Email Marketing Powered by Mailchimp