In this issue: CFNZ Conference live streaming, Plenty of Good in the Hood, CF TV stars, CF Achievers' Awards announced, 50% off Vogmasks

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CFNZ Conference Webcast

Just over one week to go till the CFNZ Conference on 7-8 May in Auckland. We're expecting well over 100 people to attend and those unable to be there can catch the live webcast of the main sessions from 9am on Saturday morning thanks to a generous grant from Pub Charity. You can access the full conference programme and also tune into the live stream at this link when it's uploaded to the website next week:
We expect our Keynote speaker Professor Scott Bell will deliver an address that cannot be missed. His presentation on New therapies in CF: 2016 definitely fits in well with our conference theme - CF Today & Tomorrow.
The CFNZ Mark Ashford Conference dinner will be held in the Jean Batten Room at the Holiday Inn from 6.30pm where the 20th Mark Ashford Scholarship recipient will be announced. A short film kindly produced by volunteer film maker Kieran Wright to mark the history of the Scholarship, will be screened between the entree and main course. This will not be live streamed, however, it will be available to view on the CFNZ website following the conference. There is a "Glitz, Glamour & Bling" theme for this year's conference dinner, so don't be shy to sparkle if you are attending.

Congratulations to our Awesome CF Achievers!

The CF Achievers' Awards have been announced with five inspiring young recipients receiving awards. 17-year-old twins Emma and Jake Gawn from Oamaru have both received awards, that are sponsored by Mylan. Emma for achievement in Sport and Jake for Education. Emma represents Waitaki Girls High School in Hockey and Squash and is Captain of the Hockey team. Jake has been made a Prefect and achieved an Excellence endorsement in both Level 1 and Level 2 of NCEA - something few other pupils at Waitaki Boys High School also achieved. Kirsty Parsons (22) from Hawke's Bay received a CF Achiever's Award in education for her impressive academic achievements - completing her Bachelor of Science with an A/A- average, and being named in the 2014 and 2015 Massey University merit lists. 15-year-old Christina Russell came second place in athletics overall at Fairfield College in Hamilton while also achieving her goal to have her feeding tube removed after gaining a healthy weight. Natalie Wineti of Rotorua has been awarded a leadership award for her ability to complete her degree in Applied Social Science and balance her role of wife and mother, along with added challenges of CF including two hospital admissions. Her perseverance and resilience are considered an inspiration to others. Her grant will go towards attending the Olympic Games later this year to watch her cousin compete in the NZ Sevens rugby team.

Northland and Canterbury rake in the $$$

Both Northland and Canterbury Branches are $11,000 better off after two successful fundraisers. The Northland Golf Tournament raised almost $11,000 earlier this month and its success was featured in the Northern Advocate. The Central South Island Charity Bike Ride generated an incredible $148,000 for several charities including CF Canterbury, which received just over $11,000, largely thanks to one of the local mothers, Paula Thompson, and her push for CF to be included. A Timaru Herald newspaper photographer was there when they went to collect the big cheque.
CF Canterbury have also got their Brick Road Productions fundraiser on this Wednesday night, 4 May, when three one-Act comedies will be performed: Desperate & Dateless, Loverboy and Raising Luigi. It's R16 and tickets cost $20. Contact Melissa Skene to buy tickets. Email: Ph 021 390 760. See the flyer below for more information:

My Perfect Family

Tauranga's Good Deed Sisters featured in a TV One documentary last Sunday. Cystic Sisters starring Kristie Purton and Nikki Reynolds-Wilson made both heart-warming and at times heart-wrenching viewing, and provided a particularly strong insight into what life is like with CF. You can watch it on AttitudeLive TV.

Hairstyles 4 CF

Free colour consultations and $10 hairstyles at shopping malls in Auckland, Wellington and Christchurch are a fun way to help raise funds for CFNZ and get pampered at the same time. Schwarzkopf has a team of stylists offering consultations and dry styling for $10, with free products to try and impressive goodie bags to takeaway. All profits to CFNZ.
The event at Riccarton Mall in Christchurch starts today and runs until Sunday so could be a good plan for the rest of the school holidays. The Queensgate event in Wellington runs 6- 8 May. We've had fantastic feedback from the event at Sylvia Park in Auckland which ended last weekend.

Awareness Week 15-21 Aug

Some branches are already underway with planning for Awareness Week and our sponsors Choice Hotels are no exception. The 35 hotels around New Zealand have again generously decided to donate $2 from every night stayed during Awareness Week between 15-21 August in NZ, so that's going to be a great help towards funding the work of CFNZ. Visit to book a stay.

Feeling Good in the Hood

Many CF branches around New Zealand are celebrating after being named an official neighbourhood group to get token boxes at Z Service Stations for Good in the Hood during May.
Auckland Branch has even more to celebrate after it got five stations and was then chosen to feature in a Z video promotion as well. Auckland Branch Coordinator Kath Sanderson (pictured above) looked like she belonged in front of the cameras and so did the Pike family of the North Shore whose son Brody will feature. A big thanks to everyone who helped. The Z Service Stations with CF boxes are: Newton, Mairangi Bay, Ellerslie, Ti Rakau Drive and Harris Road in Auckland, Taradale in Hawke's Bay, Seaview in Wellington, Whanganui, and Blenheim.

GeneFo's Vogmask discount

Sign up with the website GeneFo and receive a 50 percent discount off Vogmasks. GeneFo offers information and webinars for people with genetic disorders. Sign up here.

PARI - Brand of the Century

Our friends at Ebos have also got something to celebrate because PARI has been named "Brand of the Century" for inhalation therapy. Every three years the publishing house, Deutsche Standards, honours the most recognised German brands and this time PARI has taken the title. Other brands recognised in the past include Adidas and BMW. 

Good Links

Panui - click here to sign up
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