In this issue: Mark Ashford Scholarship, Conference News, Update from the Board, Schwarzkopf donation and giveaway, New Central Fieldworker & Grants Coordinator, Breath4CF grants

View this email in your browser

Meet our 20th Mark Ashford Scholar

Congratulations to the 20th Mark Ashford Scholarship recipient Kirsty Parsons who is currently studying for her master's degree in data science at Lancaster University in the UK. Kirsty won the Scholarship for achieving outstanding grades for her Bachelor of Science. She was presented with the Scholarship at the CFNZ National Conference dinner earlier this month.
Kirsty, who is pictured here with Mark Ashford's family, was also named a CF Achiever in Education last month for her impressive record at Massey University - being named on the 2014 and 2015 Merit lists. She never expected to receive both the Scholarship and a CF Achiever Award in the same year. Kirsty plans to use her $3000 Scholarship for her studies in the UK.
The Scholarship is sponsored by Pink Batts in recognition of the contribution Mark Ashford made towards healthy homes at Fletcher Challenge before he passed away in 1996.
There were a lot of strong candidates for the Scholarship this year - we wish all the tertiary students the very best with their studies and future careers.

Conference 2016:  CF Today and Tomorrow 

CFNZ's National Conference lived up to its theme of CF Today and Tomorrow, with a wide range of speakers offering information on all the latest therapies, research and treatment for PWCF.
Keynote Speaker Professor Scott Bell, who is the head of a lung bacteria research unit in Queensland and also Editor-in-Chief of the Journal of Cystic Fibrosis, provided hope for the future, outlining the new drug therapies and techniques that are under development, and the much-improved life expectancy for PWCF.
Well over 100 people attended the Conference which was held in Auckland. There was a lot of interest in the personal stories from PWCF. There was standing room only at the session presented by Jamie Archibald and his wife Michelle who spoke of juggling CF with family and work commitments.
Alex McKay, who graduated with a law degree last year, provided his insight into life with CF, and helped finish the conference on a high note.
The conference dinner, hosted by CF Auckland, was a sparkly affair with a glitz, glamour and bling theme, and many diners were not afraid to dust off their diamantes. It featured the screening of the inspiring Mark Ashford Scholarship video to commemorate 20 years of this Scholarship, which received amazing feedback. Please see below to read more about this project and to watch the video.
Thanks again to Mylan (makers of Creon) for sponsoring the event and also to Liberty Brewing Co for their very welcome giftpacks of craft beef for conference speakers. We are also grateful to Purell for providing hand sanitisers for all the conference bags and to Avon for their Mother's Day spot prizes.
Live Streaming:  A big thank you also to Pub Charity for their generous grant of $10,000 for the second year in a row which allowed us to live stream main conference sessions over the CFNZ webite. This webcast was accessed more than 200 times - 143 on Day 1 and 93 on Day 2.

Update from the Board - by Kim McGuinness

The May Board meeting was held in Auckland on the Friday before our very successful annual conference.
At last year’s Chairpersons' Conference we started the process of looking at the different ways we fundraise. The Board has now approved funds to contract a fundraising expert to look at all the information to help shape and finalise a fundraising strategy that is achievable for CFNZ moving forward. So watch this space for some exciting options that we can all participate in to help make CFNZ sustainable.
On 4 April this year changes to New Zealand's Health and Safety Act came into effect, and that will impact CFNZ in many ways. The Board has been working to make sure that our team is covered under the new Act moving forward.
The Board now has an active working group of CF Adults to help improve adult services. If you are an Adult with CF and would like help please contact Lisa Borkus. Email
CF Awareness Week this year is 15-21 August. If you have a CF story to tell please contact Vicky at or 09 308 9161 who will help get it out there. It is a great time to spread the message and raise much needed funds for CF. We are closely watching our budget towards the end of the financial year.
CFNZ will be in touch with branches about Awareness Week resources.
Our next face-to-face Board meeting will be in Wellington in late October where we will be holding CFNZ Board elections. If you are interested in being nominated to the Board please contact Jane Drumm. Email
Kim McGuinness
Board Member

Hi Jude! Hello Jeanette

We would like to extend a warm welcome to Central North Island Fieldworker Jude Kelly who will be based in Wellington and cover the Lower North Island and Bay of Plenty. Jude is available on Email: or mobile 021 192 6234. Jude has a background in social work and counselling in hospitals, care and protection, schools, and service agencies. She can help people access support services available to them.
But next month we also say a sad goodbye to Melinda Coombes who has been the Northern Fieldworker for the past four years and has a relationship with many of the families. CFNZ has advertised for a new fieldworker and hopes to make a new appointment shortly. Melinda's last day is 3 June and we wish her the very best.
On a positive note, Natasha Banks-Fowler has accepted a permanent role as EA/Administration Manager with our organisation, and I'm pleased to announce the appointment of Jeanette Franklyn who is an experienced grant writer. She will be working 12 hours per week. Jeanette is a pharmacist by training and has worked with PWCF in the past. She is keen to look at ways of raising grants funding to match our organisational objectives and is very happy to assist with branch applications.
By Jane Bollard, Chief Executive

Good in the Hood time

If you haven't already seen the video promotion made by Z Energy that features CF Auckland you can do so here. So far it's been viewed more than 70,000 times which is pretty amazing. Don't forget to fill up at Z where there are CF token boxes - Newton, Mairangi Bay, Ellerslie, Ti Rakau Drive and Harris Road in Auckland, Taradale in Hawke's Bay, Seaview in Wellington, Whanganui, and Blenheim. Voting ends on Tuesday.

Breath4CF Reminder

The closing date for Breath4CF grant applications is 23 June. It would be good if you could get your application forms in early June for processing. The grants cover most sports and physical activities.

Mall hairstyling a hit

Schwarzkopf's Hair Expert Mall Event which saw more than 500 people at shopping malls in Auckland, Wellington and Christchurch getting hairstyles for a $10 donation to CF proved to be extremely popular. Held during the school holidays, lots of families took advantage of the offer and many donated more than $10,
which resulted in a great big cheque of $5000 to Cystic Fibrosis New Zealand this month.
We are very grateful to Schwarzkopf for naming CFNZ as the official charity for this event.

Schwarzkopf giveaway

If you don't already receive the Panui, sign up to this e-newsletter by emailing your email address to the National Information Coordinator and be in to win a Schwarzkopf giftpack (shampoo, treatment and conditioner). The offer runs over the next four weeks and is only eligible for new subscribers. The winner will be contacted by email before the next Panui (24 June), which is emailed on the last Friday of every month.  Thanks again to Schwarzkopf for offering this kind incentive.
Mark Ashford Video
Mark Ashford Scholarship Video
The Mark Ashford Scholarship video to commemorate 20 years of CFNZ's premiere tertiary study award was the highlight of the CFNZ Mark Ashford Conference dinner. Thanks again to Kieran Wright who did a wonderful job producing it on a volunteer basis and also to the inspiring Mark Ashford Scholarship recipients who assisted. You can view the 8-minute video via YouTube by clicking on the pic above.

Good Links

Panui - click here to sign up
Copyright © 2016 Cystic Fibrosis New Zealand, All rights reserved.

unsubscribe from this list    update subscription preferences 

Email Marketing Powered by MailChimp