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Delivering innovative technology solutions to support people with long-term conditions, preserving their dignity and independence
 

Newsletter October 2016

Narcolepsy at school?

The Sleep Team at Sheffield Children’s Hospital invited D4D's Paediatric Technologies theme to join them at a Narcolepsy Family Day held in Rotherham on Saturday 15 October 2016. The idea was to bring families together from across Yorkshire to generate discussion and ideas about particular problems they face on a day-to-day basis. D4D ran a session about the activities children and families get involved with as part of a typical school day, and focused on how living with narcolepsy can affect these activities. The Sleep Team and D4D are now looking at these unmet needs to see how we can take some of them further in partnership with the families and the wider TITCH network.

Successful Ampcare ESP product launch - 'Excited to implement'
 

D4D were involved in a UK clinical trial of a new treatment which has been developed for patients who have swallowing problems following stroke to help them eat and drink safely again. The Ampcare ESP treatment involves a unique combination of electrical stimulation plus a programme of specially selected swallow strengthening exercises.

The trial showed very promising results and we are now excited to announce that, following a training day on 3 October 2016, the treatment is now launched in the UK, and will be made available to patients in the UK in seven NHS Trust sites.

The training day was extremely well received, some of the feedback from therapists included:
'One of the best delivered courses I have been to, I also feel I am better skilled to meet the needs of my client group'
'Excellent course, learned a lot, very patient focussed'
'Inspiring and motivating'
'Excited to implement!'


We will be monitoring the progress of patients in the UK when they receive this treatment and we will present the results in a future newsletter.

Elaros Electronic Bladder Diary clinical trial

We have started patient recruitment for the trial of the Elaros electronic bladder diary, designed to help users collect the information that clinicians need during diagnosis of lower urinary tract symptoms (LUTS). The trial is taking place at Sheffield Teaching Hospitals, and users will be asked to use the diary for 3 days before returning to clinic.

For more information please contact samantha.hayhurst@sth.nhs.uk.

 

NHS England visit to the Perfect Patient Pathway

The Sheffield City region’s ‘Perfect Patient Pathway’ Test Bed is one of seven national hubs where collaboration between the NHS, other providers of care, along with industry innovators is aiming to harness technology to address some of the most complex issues facing patients and the health service.
Professor Sir Malcolm Grant OBE, Chair of NHS England, visited the Test Bed in October, where he was shown around the Health Innovation Hub, met the Patient Advisory Board, and visited a GP practice for a demonstration of how a health technology is being adopted by GPs.

Professor Sir Malcolm Grant CBE, said: “The Sheffield approach creates an environment in which exciting new technologies can be developed and trialled in real-world conditions, with a view to their being rolled out to patients across England. We need to ensure the NHS is a world-leader in supporting patients in this way.

 

The Perfect Patient Pathway Test Bed based at Sheffield Teaching Hospital NHS Foundation Trust involves more than 30 partners including the region’s NHS, Social Care, Industry, Academic and Voluntary organisations. D4D is an affiliated partner of the Perfect Patient Pathway. You can read the full press release here.

And more...

Our Independence and Dignity Survey was so successful that we have re-opened it.  If you have or had a long-term condition, or care for someone that does, tell us about it - please complete our survey, here

If you have identified an unmet clinical need, please tell us about it through our Innovation Portal, here.


You can also find some of our reports and films here:
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www.devicesfordignity.org.uk


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