AUCKLAND BRANCH E NEWS
In this issue: 
SAIL 4 CF event, new Branch Coordinator, Conference 2016, Awareness Week totals to date, Auckland Marathon update and much more.
 

Our PWCF photo this month is of Matt. Matt's dad Malcolm is organising a brand new Auckland Branch event: Sail 4 CF.  This community event is committed to providing a higher level of awareness about CF in the wider community and to raise much needed funds for the Breath 4 CF Programme, while offering an opportunity for people to learn, have fun and be an active part of making a difference. All funds raised for Breath 4 CF will be used for Auckland PWCF.
The Manly sailing club's involvement in getting behind this event by providing a great place for all people to come and enjoy the fun of sailing has been truly awesome.
There will be fun activities, novelty races and an opportunity to go out on a boat with club members for a gold coin donation. Sail 4 CF will be held on Sunday the 18th of October kicking off at around 10am from the club headquarters at:
                            
65 Laurence St, Manly, Whangaparaoa
The event organising is gaining momentum  and Malcolm would love some volunteers to help out with various activities such as organising the sausage sizzle and beach based activities for children. If you or someone you know would like to get involved and help with this event please contact Malcolm on 021 171 4465 or e mail Malcolm at 
malmattella@gmail.com
 

Branch coordinator position
 

      The Auckland Branch Coordinator position has been appointed and Lorel Hallinan starts with CFNZ on Monday the 21st of September. Lorel will work Mon- Thurs from 9am until 3pm and her contact information is at the end of this newsletter.
 Lorel will be providing administration support to the Branch Committee, coordinating Branch events, producing the E News and much more. 
Please feel free to send through photo's or ideas to Lorel for the October E News.  We warmly welcome Lorel to our Community and look forward to working together.

 

 Important Stuff
Branch Committee Meetings Everyone Welcome - Tuesdays 7.30pm -  22 Sept, 20 Oct, 24 Nov
Sail 4 CF: 18th October from around 10am at the Manly Sailing Club in Whangaparoa
Film Night : Postponed until Feb/March 2016
Auckland Marathon 1 November
Christmas Heirloom Fundraiser 30 November - Everyone invited 7pm start.  

2015 CF Awareness Week         17th -23rd of August
As you all know CF Awareness Week 2015 was a roaring success. Jill and the Branch committee  thank everyone for all the amazing effort that has lead to our interim total of $29,600.00
Money raised during Awareness Week will be used for things like petrol vouchers (to help people get to hospital), supermarket vouchers, Subway vouchers, parking vouchers (to help people when they are at clinics or as in patients) and for hospital packs (to keep the young ones amused and to provide the "older" ones with things that they may need like phone top ups, vouchers and toiletries). These are all things that the branch provide to support PWCF and their families particularly when going to clinics or in hospital. We have to fund raise for these things as it is very difficult to get a grant for these kind of items.
There are still some people who have chocky fish sales outstanding, if so please get the money banked asap. Contact us at CF Auck: 09 379 0374 / 021 820 566 or Email: auckadmin@cfnz.org.nz if you have any questions about Awareness Week stuff.

UPDATE

Usually we have a feature article in the E News each month from one of our CF Nurse Specialists (Cath and Jan). With lots happening at this past month including Awareness Week and the Australasian CF Conference we didn't quite get there this month.
The great news is that all the articles written by the CF nurses and/or any member of the CF team for the E News will be available on the CFNZ website under the heading TREATMENT and then under : http://cfnz.org.nz/about-cystic-fibrosis/update-from-the-clinical-team/ so you will be able to see all the great advice in one place.

Jan Tate is currently on annual leave for the next five weeks and she asked us to remind all families of children with CF that if your child is unwell please take them to your GP or, if they are very unwell please take them to Starship Children’s Emergency Department.

    CFNZ Chairperson's Conference 2015
Last weekend was the CFNZ Chairpersons Conference where Branch Chairs and representatives (usually 1-3 from each branch) get together with the CFNZ Board and management to catch up on changes, nut through any issues and plan for the future. this years conference was held in Christchurch at the Quality Elms Hotel.
It was a very productive 2 day meeting with updates from staff on new accounting reporting requirements, grants and fund raising and communications. We heard from a speaker about privacy especially as it relates to us as a Not For Profit organization in the health sector and as always there were many topics in our Open Forum.
The CFNZ AGM is held as part of this conference with all branches (with the exception of Southland) being represented. The AGM board nominations sees the current Board remain in place with Denis Currie a very popular confirmation as President.
This year does have CFNZ posting a considerable loss and a significant part of the Conference programme was spent looking at ways to ensure sustainability going forward. Our "Sustainable CFNZ" session was facilitated by Andrew Cameron (who is a dad of a PWCF, and has a lot of experience in this area). The feeling after the workshop session was fairly buoyant and the CFNZ Board will be progressing the ideas that ensue. Two of the important overall themes to come from our Chairpersons Conference was our CFNZ byline from our logo: "Creating better tomorrows" and "Together as one" and you will see these as central in our Strategic Direction model diagram above, which outlines where we are heading to over the next three years.

 

CFNZ Conference 2016
The Auckland Branch want to let everyone know that next year's CFNZ Conference will be held in Auckland! 
The Conference date is yet to be finalised but Conference is usually held on a weekend in May. Last year there was a record attendance and sessions were also live streamed so that PWCF were able to participate without any cross infection issues and those who couldn't make it could still see the presentations.
The Auckland Branch will be applying for grants funding so that as always we can help people out with their registrations costs for this very worthwhile learning and networking event.
 


 

Numbers for the Auckland Marathon are way down this year, probably due to the clash with the Rugby World Cup final. We currently have seven people running for CF Auckland Branch in this iconic event. 
We are still actively looking for anyone who wants to fund raise for CF Auckland as part of this Marathon event, and all events are still open for entry -                               (the half marathon is usually full by now!) 
The 12 km event is over the Auckland Harbour Bridge so it's a great opportunity for people who want to run the bridge but not run the half or full marathon.                     People who are keen to run can either contact the Auckland Branch Coordinator or choose Cystic Fibrosis- Auckland as their chosen charity when they enter. Contact us at
auckadmin@cfnz.org.nz or phone 09 379 0374.
 

FAMILY AND FRIENDS ARE WELCOME TO JOIN OUR MAILING LIST
We have had three new people join out list since last E News...Welcome!
If your Family or Friends would like to receive the E-News, they are welcome to email us at auckadmin@cfnz.org.nz and we will add them to the mailing list.

USEFUL LINKS

Auckland Branch Website: http://www.cfauckland.org.nz/

Auckland Branch Facebook page:http://page https://www.facebook.com/pages/Auckland-Cystic-Fibrosis/499758193397569?fref=nf

  CFNZ Closed Group for Parents/Caregivers, PWCF and close family of PWCF: https://www.facebook.com/groups/153844877119/
 

Auckland Branch Coordinator office hours are: 

Monday to Thursday 9.00am to 3pm
Tel : 09 379 0374 Mobile: 021 820 566

Please feel free to contact us if you have any queries or requests.

 

AUCKLAND BRANCH CFNZ

Our physical address is:
Ground Floor, Suite 2,
79 Grafton Road
Grafton, Auckland 0614
 
Our Postal Address is:
PO Box 110 067
Auckland 1148
 
Tel: +64 9 379 0374  
Email: auckadmin@cfnz.org.nz  
Web:   www.cfauckland.org.nz  
   
 
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