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Coalition for Collaborative Care Newsletter - Issue 11

It is my privilege to be writing my first introduction to the newsletter as C4CC Director.  I officially took over the role on 1 April, following the appointment of Martin Routledge, our former Director, as Interim Head of Person-Centred Care at NHS England. I’m sure you’ll join me in passing on our best wishes and thanks to Martin for his time at C4CC – and our delight that he will be playing a crucial and supportive role in NHS England going forward.

It’s been a busy couple of months for the team, as always.  We have managed two large vanguard events, held planning sessions to look at where we will be focusing our efforts over the next 12 months, run a workshop in Derbyshire on co-production and have been developing a co-production model framework.

From 14 partners in the autumn of 2014, we now have 2000 members and subscribers and 45 national partners, all committed to creating a better deal for people with long-term conditions. I look forward to talking to many of you in the coming months as we develop detailed strategies in relation to supporting local people and communities and creating the conditions needed to make change. 

Please continue to share your stories with us and play your part in our mission, which we sum up as the three C’s: better Conversations between health professionals and the people they support; building and nurturing strong Communities to support people to keep well; and Co-production with the people who use health services – together we are more than the sum or our parts.

Coalition News

On 17 March, we invited our partners and co-production group members to join us in a planning session, to specifically look at our ‘Supporting People, Practice and Communities’ work stream. Together, the group planned out activities to help deliver in this area, what to prioritise and developed proposals for how to organise the work among the Coalition. The outcomes of this session are being developed into a strategy and a similar session will be held to look at the ‘Creating the Conditions’ work stream soon.

Also in March, we held two vanguard events in Leeds and London, in connection with NHS England. With more than 200 people attending across the two days, the vanguards came together for support in delivering the six core principles of ‘Empowering People and Communities’. They were given the opportunity to meet with national organisations and groups who could provide practical strategies for change.

To keep up to date on our news, follow us on Twitter @Co4CC and join as a member to receive our newsletter straight to your inbox.
Shared Decision Making: Information and Resources from Royal College of Physicians

This video from the RCP Future Hospital Programme debunks the myth that person-centred approaches to healthcare are more time intensive than business-as-usual approaches.

It describes how clinicians can re-organise specialist clinics to support them to work with patients in a partnership and collaborative way and highlights how providing patients with information, decision support tools and agenda-setting prompts in advance of their consultations can enable patients and clinicians to make better use of the consultation by having an informed discussion that focuses on what is most important to the patient.

To find out more, click here.
Royal College of General Practitioners Clinical Champions Network for Collaborative Care and Support Planning (CC&SP)
This network is now up and running!

Our main aim is to accelerate the adoption of CC&SP into day to day clinical practice by supporting practitioners working in their own practice or specialty, encourage local adoption and sharing the learning.

“Learning by doing” is our philosophy as we overcome the obstacles to implementation of a new way of working. We are being supported by NHS England and Coalition for Collaborative Care (C4CC) on this journey of discovery and are finding some dedicated and passionate clinicians from across the United Kingdom, who are committed to working differently, by implementing a whole system change to the care they provide, so the conversations between health and care professionals and the people they serve result in enabling, coordinated and personalised care, that demonstrates respect, compassion and dignity

Despite all the doom and gloom in the media about the NHS, there are pockets of clinical excellence in both general practice and hospitals determined to make patient centred care a reality. We need to keep these fires burning, until the fire of knowledge is burning bright across the NHS.

Dr David Paynton & Dr Katie Coleman
Carers Week 2016

This year, Carers Week will take place between June 6 – 12 2016 and its focus will be on building Carer Friendly Communities. We are asking our supporting organisations to spread the word about our campaign throughout their networks.

There are different ways organisations can help us achieve that. They can invite their networks, promote our Carer Friendly Checklist and help us build a wall together on the Carers Week website. The wall is made up of bricks representing organisations that are RECOMMENDED by individuals, other organisations or carers themselves because they already meet the essential criteria that make them carer friendly.

This is a great opportunity for organisations to be recognised for the work they do to improve carers’ lives and for carers to show their appreciation. Bricks also represent organisations who have been INVITED to become more carer friendly, and organisations who have COMMITTED themselves to take carer friendly action.

Recommending, inviting and committing is easy, and this can be done by simply asking your contacts to fill in a simple online form. After completion, a brick will be added to our wall and the name of the organisation will appear on the Carers Week website.

Organisations can also encourage their networks to like our Facebook page and actively take part in our campaign by organising events or simpler activities (such as putting up an information stand or displaying flyers at their venues) during Carers Week. Once they register their activity online, this will appear on the Carers Week map of events and will help us raise our voice to make a real difference for carers.

'Up Close and Personal': How Mental Health Services can work together to provide personalised support

Think Local Act Personal (TLAP) is holding a national event in partnership with the National Development Team for Inclusion (NTDi) and Implementing Recovery through Organisational Change (ImROC) on 19th May 2016 at Birmingham City Football Club to address the barriers to personalised services that still exist for people with mental ill-health.

Come and be part of the debate - and the solution.

You will:

  • Hear from national leads across the NHS and social care sector
  • Influence that national agenda
  • Find out from the team of stakeholders in Dorset (people with lived experience, CCG, local authority and NHS Trust) about how they are working together to deliver personalised support
  • Find out what's working well and not so well from colleagues across the country
  • Attend workshops tailored around the issues you raise
  • Help shape an ongoing peer learning programme for TLAP and partners.

The discussions will be used to inform and shape practical future sector-led support arrangements that TLAP hopes to deliver in the future.

To register for the event, please complete this application and return it to 

Me, My Family, My Home, My Friends, My Life

Me, My Family, My Home is ambitious. It seeks to make significant improvements to the lives and support received by children, young people and their families, moving to a single 'whole life, whole family' approach.

Funded by the Department for Education, the project focused its energies on supporting six local authorities and their partners to develop new support packages for children and young people with complex needs and complicated home lives. This group included: children and young people in the care of the local authority,

  • those receiving high cost and fully funded support from health;
  • young children where there was an understanding that if things weren't tackled early on that everyone was concerned about the longer term;
  • and children and young people placed away from home due to child protection concerns.

It has been a year of incredibly hard work on the part of many in the six areas; some of it producing great results for children and families and at other times creating a great deal of frustration with systems and processes that deflect the energy of people away from centring on what will work best for the child, young person and/or family.

The report available sets out the work, the learning and key recommendations to getting started on tackling support for those in the most complicated of situations. We explain a very simple way of understanding how things need to fit together, 'A Framework for Keeping it Simple', and include an interview with one of the forerunners of this approach, Jenny Dalby from Middlesbrough.

To find out more, click here.

NICE has published draft guidance on Multimorbidity: clinical assessment and management. This draft guidance, which is now open for consultation, sets out how to offer a tailored approach for people with multiple long-term conditions and how to put them at the heart of the decisions about their care. The closing date for the consultation is 12 May 2016. You can also take a look at what David Haslam, Chair of NICE, has to say on the topic in this video.

Picker Institute Europe has launched a toolkit for measuring the experiences of people using health visiting services across England. Available on their website, health visiting service provides will be able to licence the toolkit free of charge. Find more details here.

The Royal College of Physicians (RCP) recently shared a blog, looking at shared decision making and what they learnt from a television documentary 'The boy who wanted his leg cut off'. The blog highlights how the programme, described as provocative and disturbing, shows how easily multiple interactions and treatments can be bewildering and confusing and the need to see patients as partners in their care. To read the blog in full click here.

Karen Middleton, chief executive of the Chartered Society of Physiotherapy (CSP) discusses how empowering patients and expanding self referral to physiotherapists can free up GP's time and help reduce costs. See more here.

To coincide with the release of National Voices' discussion paper on 'What is the role of VCSE in care and support planning' as part of their Wellbeing Our Way (WOW) programme, Lynne Craven wrote about why it is time to stop talking and start doing.

In 2009, the National Council for Palliative Care set up the Dying Matters Coalition to promote public awareness of dying, death and bereavement. This year, their Dying Matters Awareness Week runs from May 9-15, with a range of national and local activity across the country. This year’s theme is The Big Conversation, and we will be encouraging everyone from parliamentarians to the public to make sure the have their end of life plans in place. There will be death cafes, “before I die” boards and stalls in town and city centres, theatre shows and Twitter chats and so much more. For more information, please see
Personalise my care
Free films and graphics on person-centred care to use in your work
How many times do you have a presentation to give, a workshop to host or a tweet to write about long term conditions and you struggle to find new ways to make an impact?
Well look no further as the NHS England Long Term Conditions Sustainable Improvement Team has produced a series of films and graphics to get people talking and describe in a nutshell what it is like to live with a long term condition.
The team will soon be adding a three-minute animation and an eBook of illustrations to the Action for Person-Centred Care resources, alongside a series of powerful films that were co-produced with Ipsos MORI, which are available now.
Developed following conversations between people with long term conditions, their carers, health and care professionals, commissioners and policy-makers, they talk through what person-centred care is and what needs to be done to embed it.
Beverley Matthews, Sustainable Improvement Long Term Conditions Programme Lead, said: "This is very exciting work that gives a uniquely rich insight into the lives of people living with long term conditions. The resources tell the story of what people with LTCs face in a dynamic and engaging way, and I strongly encourage people to use these resources and share them with colleagues.
Please do use these in your work - they were co-developed by you, for you. Do let the team know if you are using them and if you have any queries or need any support by emailing
See more here.
Wellbeing Our Way

National Voices' Wellbeing Our Way programme is about enabling people to manage their health in ways which matter to them. It works through community and voluntary organisations and is supported by The Health Foundation, an independent charity working to improve the quality of healthcare in the UK.

Wellbeing Our Way's communities of practice are bringing together small, diverse groups of voluntary and community organisations. We aim to make real headway in developing some of the 'more than medicine' approaches we know can enable people to manage their health needs and live well. The communities of practice are focused around five areas, peer support, care and support planning, supporting self management, engaging people in shaping health and care support and person-centred information and helplines.

If you work within a charity or community organisation and would like to know more, or join a community, please get in touch with Natalie Koussa.

National Voices has also launched a new website with new areas of the site dedicated to our new WOW Community: a space to share examples of great practice around engaging people in their health and care, a redeveloped blog platform, and a new digital home for the NHS Five Year Forward View People and Communities Board.
There is also a members area with a forum and we will also be introducing an online space for our Wellbeing Our Way programme, that allows members of the WOW Communities of Practice to engage with each other through the site.
Please have a look at the new website and let us know what do you think!
Introducing the Commissioning Simulation Model

The LTC Year of Care Commissioning Programme, together with Simul8 Corporation, has launched an enhanced version of a computer simulation model that helps commissioners predict the impact of changes to patient services and support commissioning decisions.

Powered by real-life data gathered from the programme, the tool calculates the health and social care costs for different groups of patients as they receive services.

Using the tool, users can model changes to the services patients receive, for instance to assess planned delivery with the way they are actually delivered in their locality, or to match the way they plan to change local services. This allows users to test the impact of current or planned services on resources including capacity – for example how many community beds or GP practice nurses are needed for a particular service change, as well as finances.

For more information and to try out the tool, click here 
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