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FYI Fridays
March 27, 2015
Family Centered Rounds

Family-Centered Care (FCC) is a partnership approach to healthcare decision-making between the family and healthcare providers. The major principles of FCC include: Information Sharing, Respect and Honoring Differences, Partnership and Collaboration, Negotiation, and Care in the Context of Family and Community. Implementation, advocacy, and policy of FCC can be grouped into 2 settings: inpatient, exemplified by Family-Centered-Rounding (FCR), and ambulatory, exemplified by the Medical Home concept. Our current focus is on FCR in the inpatient setting through interdisciplinary rounds conducted at the bedside or with the family just outside the child’s room. Input is obtained from all healthcare team members including the nurse, patient, and family.  Active family involvement in rounds, makes the patient and family a full partner on the healthcare team, empowering them to provide critical feedback on care delivery. To date there has been no broad implementation of FCR at CoA, although some pediatric services practice components of it.  Increasingly there has been support from all major stakeholders to unify the rounding process throughout the hospital by systematically implementing FCR. As a first step towards FCR, a committee comprised of physician champions from each division, nursing leadership, members of CoA administration, and parents, implemented whiteboards as a communication tool to engage families.  All whiteboards include pre-written prompts in English and Spanish, click here for a larger view.
 
The feedback, particularly from nurses and parents, has been very positive particularly in regard to knowledge of the daily plan/goals. Our goal is to fully implement FCR by October 1st! We have only just begun - FCC is a journey and not a one-time event. There is no end-point but rather continual evolution towards our goal of creating partnerships among healthcare providers, patients and families that will lead to the best outcomes and enhance the quality of care. To learn more about this outstanding project and its hospital-wide roll-out, click here.
Avi Madan-Swain
GI Clinic Relocates
 

On March 23rd, the Division of Gastroenterology, Hepatology and Nutrition relocated their clinic space from Clinic 10 on the ground floor to 5NW.

 

The division has grown with the addition of Dr. Mestre, and Clinic 10 was no longer able to accommodate the number of patients needing to be treated.  The “Old Clinic 10” had 10 exam rooms, while the “New and Improved Clinic 10” has 20 exam rooms in addition to a more open floorplan.

 

Many thanks to all the COA and DOP IT and clinical staff that worked so diligently to ensure a smooth transition!

                         

 
- Ryan Allen
             Dr. Priya 
Priya Prabhakaran, MD, has been named the Fellowship Director for Pediatric Critical Care Medicine
               Dr. Clay Cohen
Congratulations to
Clay Cohen, MD
Pediatric Chief Resident,
on his recent induction into
Alpha Omega Alpha
Honor Medical Society
 
Clay was nominated by MS4 students for his leadership, enthusiasm for teaching, and role model qualities. He was one of 5 individuals selected among all UAB residents and fellows considered. His research experience, dedication to  education, and leadership justify this well deserved honor.
Pediatric Residency News
  
Please join us in welcoming our Pediatric Residency Class of 2018, our Med-Peds Class of 2019, and our Pediatric Neurology Intern for the Class of 2020!  Click here for the announcement.
Kimberly Butler
UAB Presentations
 
University of Alabama School of Medicine (UASOM) Faculty Scholars Program in Health Disparities and Culturally Responsive Care 
application deadline is
Friday April 17

 
Pre-Award Research
Office News

 
New Form To Capture Additional Indirect Costs in Multi-project Grant Applications 
(NOT-OD-15-081) 

Reminder: NIH Grant Applications and the NIH Genomic Data Sharing Policy
(NOT-OD-15-083) 
Children’s|UAB to Exhibit
PAS Meeting
April 25 – 28th 
San Diego

Faculty Development Opportunities

Click here for the listing of UAB Spring Learning System Programs and DCGME Faculty Development Opportunities 
2015 UAB Mentoring Academy for New and Junior Faculty
Mark your calendars

April 21-232015
Click here to view the Faculty Development Website
CALL FOR NOMINATIONS/ APPLICATIONS
 
Nominations are open for the 
Dean’s Excellence Awards 
deadline: Friday, April 10
Read more...

Center for Clinical and Translational Science (CCTS)
Request for Pre-Applications
Due May 1, 2015, 5pm CT
Link to RFA
Faculty Meeting
Wednesday, April 1 
Bradley Lecture Center
Noon-1:00 pm
  
Lunch will be served

Faculty Activity Forms Due
April 17th  
 
              Dr. Smith
David Smith, MD, 3rd year fellow in Pediatric Emergency Medicine, received the 2015 Society for Pediatric Research Clinical Fellows Research Award for his research to be presented at the upcoming PAS meeting. This award is presented to the top 3 fellow research projects for the entire meeting.
COA Physician
Appreciation Breakfast

April 10, 7-10 am
Physician Dining Room
McWane Building
House/Senate Vote on extension of SCHIP
 
The United States House of Representatives voted 392 – 37 in favor to repeal the Medicare Sustainable Growth Rate and to extend the Children’s Health Insurance Program  (Alabama AllKids) through FY 2017. The bill now goes to the Senate.  Should the Senate agree and pass the bill (HR 2), President Obama will sign it before March 31st. This is important legislation for two reasons. The pediatric community has worked hard to get Medicaid fee schedules closer to the Medicare fee schedule. If there is a reduction in Medicare fees, there could be a reduction in  Medicaid fees.  TriCare and the ESRD program use Medicare fee schedules. (Alabama House of Representatives Members voting in favor to repeal SGR and sustain CHIP: Representatives Robert Aderholt, Bradley Byrne, Martha Roby, Mike Rogers, and Terri Sewell. Those voting against: Representatives Mo Brooks and Gary Palmer.)
Center for Pediatric Onset Demyelinating Disease (CPODD)
Crowdfunding through April 9 for
CPODD Family Retreat
Annual 4-day family camp for pediatric neurology patients with Multiple Sclerosis and Neuromyelitis Optica
at Children’s Harbor
June 4-7th

AL Chapter 
Crohn's and Colitis Foundation (CCFA) presents a

Patient Education Program
Bradley Lecture Center
Saturday, April 11th

9:00am-1:00pm
For adult and pediatric patients with Inflammatory Bowel Disease and their families.
Information can be found at
www.ccfa.org/chapters/alabama

Pediatric Neuro-Oncology Research Symposium
Friday, May 1st
8:00 am - 2:15 pm
Bradley Lecture Center
Free to UAB & COA employees
Register here

The deadline for submission of information for inclusion in the FYI Fridays newsletter is noon on the preceding Thursday.
FYI Fridays Archive
New Grants

Suresh Boppana, MD (Ped - Infectious Disease) Genetic Causes as Co-factors in Cytomegalovirus Associated Hearing Loss. National Institutes of Health/DHHS. $175,139. 12/03/2014 - 11/30/2015.

William Britt, MD (Ped - Infectious Disease) Vaccine-Mediated Targeting of Viral IL 10 to Control HCMV Shedding and Reinfection. University of California, Davis. $79,050. 12/01/2014 - 11/30/2015.

Sahar Fathallah-Shaykh, MD (Ped – Nephrology) International Pediatric Peritoneal Biopsy Study in Children. University of Heidelberg. $1,215. 12/31/2015 - 12/31/2015.

Daniel Feig MD (Ped – Nephrology) Cure Glomerulonephropathy (CureGN): Integrative Proteomics & Metabolomics for Pediatric Glomerula Disease Biomarkers. Nationwide Children's Hospital. $9,955. 06/01/2014 - 05/31/2015.

Smita Bhatia MD (Ped- Hem/Onc) PAAR4Kids -Pharmacogenomics of Anticancer Agents in Research in Children. St. Jude Children's Research Hospital. $8,905. 01/01/2015 - 06/30/2015.

Thomas Howard MD (Ped Hem/Onc) New Born Screening. Alabama Department of Public Health. $37,663. 10/01/2014 - 09/30/2015.

Jeffrey Lebensburger MD (Ped - Hem/Onc) Baby Hug Follow-Up Study II. University of Texas Southwestern Medical Center at Dallas. $25,985. 01/01/2015 - 12/31/2015.

Hector Gutierrez MD (Ped – Pulm) UAB Cystic Fibrosis Center for Care, Teaching and Research. Cystic Fibrosis Foundation. $146,530. 07/01/2014 - 06/30/2015.

Hector Gutierrez MD (Ped – Pulm) Cystic Fibrosis Screening for Newborn Infants. Alabama Department of Public Health. $37,663. 10/01/2014 - 09/30/2015.

William Harris MD (Ped – Pulm) Mechanisms of Pulmonary Fibrosis in CF Lung Disease. Kaul Pediatric Research Institute. $30,000. 01/01/2015 - 12/31/2015.

Gail Mick MD (Ped – Endocrinology) Newborn Screening Program.  Alabama Department of Public Health. $37,795. 10/01/2014 - 09/30/2015.

Michael Stalvey MD (Ped – Endocrinology) Characterization of Glucose Regulation in the CFTR Knockout Rat. Kaul Pediatric Research Institute. $30,000. 01/01/2015 - 12/31/2015.

S. Lane Rutledge MD (Clinical Genetics) Alabama Newborn Screening Program. Alabama Department of Public Health. $76,561. 10/01/2014 - 09/30/2015.

S. Lane Rutledge (Clinical Genetics) Alabama Department of Public Health - Civitan Sparks Clinics) UAB Metabolic Team Project to Provide Medical Food/Formula For Residents in Need with Inherited Disorders of Metabolism. Alabama Department of Public Health.  $25,000. 10/01/2014 - 09/30/2015.

Steven Rowe MD (Med - Pulmonary/Allergy/Critical Care) Training and Equipment for the MBW sub-study of the PROSPECT Study. Cystic Fibrosis Foundation. $30,688. 07/01/2014 - 06/30/2015.

Steven Rowe MD (Med - Pulmonary/Allergy/Critical Care) Mechanistic Link Between Rescue of CFTR Mediated Anion Transport, Airway Surface Liquid Regulation, and Mucociliary Transport by CFTR Modulators Cystic Fibrosis Foundation. $108,000. 01/01/2015 - 12/31/2015.

Steven Rowe MD (Med - Pulmonary/Allergy/Critical Care) TDN Additional Research Coordinator (ARC) Cystic Fibrosis Foundation. $96,957. 12/01/2014 - 11/30/2015.

 
Recent and Upcoming Publications, Presentations and Posters

J Pediatr. 2015 Jan;166(1):109-14. doi: 10.1016/j.jpeds.2014.09.032. Obstructive sleep apnea syndrome increases pedestrian injury risk in children. Avis KT, Gamble KL, Schwebel DC.
Our study evaluates pedestrian behavior, including reaction time, impulsivity, risk-taking, attention, and decision-making, in children with obstructive sleep apnea syndrome (OSAS) compared with healthy controls. Using a case control design, 8- to 16-year-olds (n = 60) with newly diagnosed and untreated OSAS and healthy controls engaged in a virtual reality pedestrian environment. Children with OSAS were hit by simulated cars more often and  Children with OSAS waited less time to cross, indicating greater inmpulisvity. Results suggest OSAS may have significant consequences on children's daytime functioning in a critical domain of personal safety, pedestrian skills. 

 
 2014 Nov 8. pii: jc-00244-14. Sleep Patterns, Sleep Instability, and Health Related Quality of Life in Parents of Ventilator-Assisted Children. Lisa J. Meltzer, PhD; Maria M. Sanchez-Ortuno, PhD; Jack D. Edinger, PhD; Kristin T. Avis, PhD.
This study compared the sleep patterns of parents of ventilator-assisted children (VENT) and healthy, typically developing children (HEALTHY), and examined the relationship between sleep variability and perceived HRQoL. VENT parents showed significantly later bedtimes, and other chronobiotic chaos patterns. Many parents of ventilator-assisted children experience deficient sleep and show significant instability in their sleep, which was related to HRQoL. Similar to shift workers, variable sleep schedules that may result from caregiving responsibilities or stress may impact parental caregivers' health and well-being. Additional studies are needed to determine how support and other interventions can reduce sleep disruptions in parental caregivers.

Circ Cardiovasc Genet. 2015 Mar 24. pii: CIRCGENETICS.114.000740. Association of a 62 Variant Type 2 Diabetes Genetic Risk Score with Markers of Subclinical Atherosclerosis: A Transethnic, Multicenter Study.
Dauriz M, Porneala BC, Guo X, Bielak LF, Peyser PA, Durant NH, Carnethon MR, Bonadonna RC, Bonora E, Bowden DW, Florez JC, Fornage M, Hivert MF, Jacobs DR Jr, Kabagambe EK, Lewis CE, Murabito JM, Rasmussen-Torvik LJ, Rich SS, Vassy JL, Yao J, Carr JJ, Kardia SL, Siscovick D, O'Donnell CJ, Rotter JI, Dupuis J, Meigs JB.

Type 2 diabetes and cardiovascular disease may share risk factors.  Subclinical atherosclerosis predicts events in individuals with and without diabetes. Type 2 diabetes genetic risk may predict both Type 2 diabetes (T2D ) and subclinical atherosclerosis (SCA) . We hypothesized that greater T2D genetic risk is associated with higher extent of SCA. In this study, we conducted a  cross-sectional analysis of patients including  9,210 European Americans, 3,773 African Americans, 1,446 Hispanic Americans and 773 Chinese Americans without known CVD and enrolled in four longitudinal studies: FHS, CARDIA, MESA and GENOA.  Specifically, we tested a 62 T2D-loci genetic risk score (GRS62) for association with measures of subclinical atherosclerosis, including coronary artery (CACS) or abdominal aortic calcium score, common (CCA-IMT) and internal carotid artery intima-media thickness, and ankle-brachial index (ABI). We found that SCAdoes not have a major genetic component linked to a burden of 62 T2D loci identified by large genome-wide association studies. A shared T2D-SCA genetic basis, if any, might become apparent from better functional information about both T2D and CVD risk loci.

J Virol. 2015 Jan;89(1):361-72. doi: 10.1128/JVI.02393-14. Identification of a neutralizing epitope within antigenic domain 5 of glycoprotein B of human cytomegalovirus. Wiegers AK, Sticht H, Winkler TH, Britt WJ, Mach M.

Presentations

Efficacy of topical lidocaine to decrease discomfort with intranasal midazolam administration: a double-blind, randomized, placebo-controlled trial. Smith, David N. MD; Cheek, Hugh MD; Pruitt, Chris MD. Poster Presentation at Pediatric Academic Societies 2015 Annual Meeting, April 25-28; San Diego, CA. 

Links Between Children’s Excessive Daytime Sleepiness and Quality of Life. Jenni B. Rouse, Hayley Wells, Kristin Avis, & David C. Schwebel. Poster presented at the Society of Research in Child Development biennial meeting, March 2015, Seattle, WA. 
Copyright © 2015 The UAB Department of Pediatrics, All rights reserved.