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NHS St Helens CCG Community Newsletter
Edition 9 - September 2018

ENGAGE is the best way to find out about what's happening in health and social care and how you can get involved.
Engagement Lead Blog - September 2018
During September the team supported two local campaigns, Know your Type (KYT) and Atrial Fibrillation campaigns. Firstly the KYT campaign was a joint campaign in partnership with NHS Blood and Transplant to raise local awareness of becoming a blood donor and provide the opportunity for people to have a simple test to find out what their blood type is. During the week we had over 40 people adding themselves to the register to give blood and finding out what blood type they are. The CCG will continue to work with the blood and transplant service to carry out a similar campaign with a local workplace.
The second campaign was in partnership with the Innovation Agency and was aimed at testing as many people as possible to identify if they are living with Atrial Fibrillation. Atrial fibrillation is a heart condition that causes an irregular and often abnormally fast heart rate. The team held a number of drop in session during the week to capture as many people as possible. During the week over 540 people were tested. A normal heart rate should be regular and between 60 and 100 beats a minute when you're resting. 
In atrial fibrillation, the heart rate is irregular and can sometimes be very fast. In some cases, it can be considerably higher than 100 beats a minute which can cause problems e.g. dizzinessshortness of breath and tiredness. You may be aware of noticeable heart palpitations, where your heart feels like it's pounding, fluttering or beating irregularly, often for a few seconds or, in some cases, a few minutes, it is however sometimes Atrial Fibrillation does not cause any symptoms and a person who has it is completely unaware that their heart rate is irregular. You can find out more about the symptoms of atrial fibrillation here.

We also held our Patient Experience an Involvement Group (PEIG) meeting is made up of representation from the CCG, Local Authority, Public Health, Health watch, VCA and Patient Representatives. The PEIG is a sub group which reports directly to the CCG Quality & Performance Committee, in line with the quality strategy. The group supports and advises on borough-wide engagement, consultation and communication activity and initiatives relevant to the delivery of the CCG Commissioning Strategy and St Helens Health and Well-being Strategy for more information on this group or how to get involved with the work of the CCG.
Engagement Opportunities 

GP online services Webinars for Patient Participation Group (PPG) Members

Patient Participation Groups (PPGs) play an important role supporting GP practices, particularly in engaging with patients.

The NHS England Primary Care Digital Transformation team is holding a series of FREE webinars aimed at PPG members to help them understand all about GP online services and how they can support their local practice in getting more patients to register for this service. The webinars will last between 60-90 minutes depending on how many questions are asked.

Webinars in the coming months are as follows:

·         Wednesday 29 August 10.00-11.00

·         Monday 17 September 13.00-14.00

·         Wednesday 24 October 10.00-11.00

·         Monday 29 November 13.00-14.00

·         Wednesday 19 December 10.00-11.00

To sign up please go to:

Do you want your say on the next 10 years for the NHS?
You can take part online up to 30 September 2018 here.

This survey was created for the whole of the NHS 10 year plan. It asks you to fill in a page saying which part of England you are from, and if taking part as a member of the public, group or organisation. You can then choose which sections of the NHS plan you would like to comment on. The learning disability and autism section has two questions, which are:

1. What more can the NHS do, working with its local partners, to ensure that people with a learning disability, autism or both are supported to live happy, healthy and independent lives in their communities? (200 words max)

2. How can we best improve the experiences that people with a learning disability, autism or both have with the NHS, ensuring they are able to access the full range of services they need? (200 words max)

Please ask someone you trust to help you, if you need to.

This is your chance to get your voice heard!
Working with local people and professionals to transform cancer care in Halton, Knowsley, St Helens and Warrington.

We have great specialist cancer care across Cheshire and Merseyside.  Our local specialist centre, the Clatterbridge Cancer Centre, ranks as one of the best in the country.  This means that currently local people in the Halton, Knowsley, St Helens and Warrington areas are able to access these specialist services.

 We, as your local NHS Clinical Commissioning Group, have looked at the future of these services and are working with clinical experts to make sure they remain the best possible.  We want to work with them and you to make sure we continue to improve the way we provide specialist cancer care services.  More information can be found by downloading the Case for Change document.

The Case for Change document sets out what will need to change in the future to make sure local people still benefit from these high quality cancer care services.  Over the next few months we will be involving people who use cancer services, plus the people who deliver and support them, to help shape the way forward. 

Please click here to access the Feedback Form. We will also be contacting groups, organisations and forums to invite them to take part in events and workshops.  For more information on how you can get involved, please email or call 0151 515 0003

Libraries Week Well-Being Activities
Increase your well-being with St Helens Library Service

Call into your local library and discover how we bring communities together, combat loneliness,             provide a space for reading and creativity, and support mental health.

The week long activities will take place between the 8th and 13th October, more information about locations can be found here. 
Campaigns and Information 

Are you thinking of quitting smoking? Research has shown that if you manage to quit for 28 days, you're 5 times more likely to quit for good.

This year's Stoptober begins on 1 October 2018, and there's never been a better time to stop smoking:

  • Success rates are the highest ever
  • Cigarette packs are losing their appeal since the introduction of standardised packaging
  • E-cigarettes, which lots of people find helpful for quitting, are now more tightly regulated than ever before to assure their safety and quality

There's lots of support available, including the Stoptober app, support through Facebook messenger, your local Stop Smoking Service, and lots of different aids to help you along like medicines and e-cigarettes. Find out more on the Stoptober website.

Everyone's quitting journey is different, but you won't be alone. Nearly a million people have taken part since Stoptober began five years ago. 

To join thousands of others for the biggest stop smoking challenge of its kind, visit the Stoptober website and find the right support for you.

Breast Cancer Awareness Month

More than 5,000 women will be diagnosed with breast cancer this October.

October is Breast Cancer Awareness Month. More people than ever are surviving, but we know that physical treatment is only half the story.

Breast cancer can be devastating to a woman’s emotional wellbeing and many are left feeling isolated from their friends, family and colleagues, coping with anxiety, depression and the constant fear that their cancer will return. They need expert care to recover. That’s why we need you to help us #ShareTheCare and donate this October. 

There are lots of ways you can support this years campaign which include -

  • Share the signs and symptoms guide
  • Invite your local MP to the Secondary Breast Cancer Awareness Day

CATCH is a free health app for parents and carers of children aged 0-5.

The app provides you with the information necessary to decide when your child needs medical treatment or when self-care is more appropriate.

Trusted advice for new parents

The aim of CATCH is to ease the sense of information overload, particularly regarding pregnancy and children’s health. With the number of resources available, it can be difficult to know who to trust. CATCH provides local NHS-approved information with your best interests at heart, so you won’t need to look elsewhere.

Find out more about how the catch app could help you

Tell us your story
We are always looking at ways of improving healthcare services. A big part of how we can do that is to hear your experiences of health care. All experiences and stories, both positive and negative are good for us to know about and you can share these with us in a number of ways including;
The next ENGAGE newsletter will be brought to you in October 2018

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