In this issue: Challenge Wanaka, New CEO, Travel Insurance update, CF cycling hero, Calf-raiser fundraiser, Mark Ashford Scholarship open

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CF heroes at Challenge Wanaka

We had some amazing teams and individuals competing in Challenge Wanaka last weekend where Breath4CF was the official charity.
Twins Jake and Emma, and their friend Kate (pictured above), raised almost $2500 for CF in just 11 days, which is really quite incredible.
Dunedin Hospital physio Joshua Woodside entered the Lake Wanaka Half Ironman and signed up to raise money for Breath4CF because until recently he worked with the paeds CF Clinic and got to know the children and families well.
Another team decided to fundraise because they were inspired by the Good Deed Sisters in Tauranga who undertook 65 days of good deeds last year.
And our own Administration Manager Julie Clemett also did her bit cycling the 90 kilometre course with relative ease in the wind.
A flag signed by the athletes fetched $2500 at auction, and a big thank you must go to the winner of the Women’s Challenge, Yvonne van Vlerken, who kindly donated $1000 of her prize money to Breath4CF. A profit of more than $9000 has helped to breathe new life into the Breath4CF fund.

Welcome to CFNZ's new Chief Executive

Welcome to CFNZ's new Chief Executive Jane Bollard who starts on 7 March. Jane, who will be based at the Auckland office, has a strong background in community development and a commitment to ensuring people have the information, advice and support they need. She held a management role at Citizens Advice Bureau in Auckland, and most recently was Business and Community Development Manager for Plunket's Northern Region.
Jane has experience working in medical research, and with government agencies and not-for-profit organisations. She holds a science degree in nutrition from Otago plus post-graduate qualifications in health management and finance, and it's a pleasure to welcome Jane on-board.

CF Auckland also has a new Branch Coodinator. Kath Sanderson has a background in health, administration and event planning, and is enjoying getting to know the Auckland Branch Committee and the wider CF Auckland community.

Charity ride for CF

Amid all the hype over Challenge Wanaka is another unsung hero of the CF community. Paula Thompson (pictured on the right-hand side) has a son with CF and she's undertaken many successful fundraisers for CF Canterbury including her most recent event - the Central South Island Charity Bike Ride. Canterbury Branch would like to acknowledge her big contribution to helping the local CF community.

CF Conference livestreamed

We can confirm the CF National Conference, 7-8 May in Auckland, will be livestreamed over the internet for PWCF unable to attend. We will keep you informed about the conference programme as it's finalised. Anyone wanting to attend  this year's conference can contact their local branch or email: for more information. Most branches are hoping to provide some funding for those who wish to attend conference, so please talk to your branch to see what assistance they may be able to provide as this kind of education and networking is one of the many things CFNZ branches fundraise for.

Raise a Calf for CF

Waikato Branch has taken the bull by the horns in a new, innovative calf fundraising programme being run in association with RD1 Livestock. The scheme, which is being rolled around NZ will see people rearing a bull calf to donate when it's reached the required weight (to be collected late November). Proceeds will be split between CFNZ (to be used for costs towards nationally provided services and programmes), and the local CF branch. Waikato Chair Deb Wood is the contact for the North Island (email: and Canterbury Branch Chair Melissa Skene is the contact for the South Island (email Those who adopt a calf could also be in to win an accommodation prize.

Good in the Hood time

Applications for Z Energy's Good in the Hood programme close on 29 February. The community donation programme is held in May when every station in NZ gets $4000 to share between four neighbourhood groups with customers deciding the share by voting with orange tokens. Last year CF Auckland won the most tokens at Botany Downs. To apply visit
CFNZ is approaching a significant milestone - reaching 1000 likes on Facebook. We currently have over 900 likes but would really love 1000. Please "like" our Business Page if you haven't already and encourage friends to do the same.

Travel Insurance

Some of our members have had success arranging for travel insurance via the travel insurance brokers
They use insurers who will consider cystic fibrosis on a case by case basis, and people whose health has been stable for six months, with no hospitalisations or changes in their treatment or medication, may be approved for medical and evacuation cover with Bupa after medical assessment.
Health Insurance owner Sandra Grant says that hospital “tune ups” where there are any adjustments in treatment or medication might affect the application, but routine visits may be fine. For this reason, all queries are reviewed by Bupa’s medical assessors so that there is no confusion about the coverage.
The insurance is for worldwide travel, and for those under 37 costs US$4.50 a day with an admin fee of $42. For more information contact

Mark Ashford Scholarship open

The Mark Ashford Memorial Scholarship is CFNZ's premier study award, with a grant of $3000 to the winning applicant.
This award is funded by Tasman Insulation, manufacturers of Pink Batts, in memory of Mark Ashford, a person with CF who made a huge contribution to home health with his work on the Fletcher Group’s Healthy Homes book.
This is an important year for the award because it's the 20th anniversary and will be marked at the CF Conference in May.
The Scholarship is open to any person with CF currently studying at a tertiary level (including trade courses). The application form is available on the CFNZ website, and is easy to fill out.

I will not be Ignored!
New Zealanders Alana and Nick feature in this video parody of Katy Perry's Roar. The song for CF, I will not be ignored, was recorded by American Andy Lipman who wants to change stereotypes about people with CF. Click the pic to view on YouTube.

Good Links

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